Category: My Pearl

Graduation (warning, I get a bit spicy)

This is an odd year for us. We knew our son would be graduating high school, but not our daughter. She LEGALLY according to federal law was supposed to be supported by her high school until the age of 22. She has been in… Continue Reading “Graduation (warning, I get a bit spicy)”

3 Strikes – I’m Out!

She said it three times. I smiled back three times. My brain probably misinterpreted it three times. “It’s good that you brought Piper out,” she said. What I heard was, “It is good that you did not keep your daughter with disabilities at home,… Continue Reading “3 Strikes – I’m Out!”

The Ducky Life

How do I teach friendship to my sweet girl that has no words? She is nonverbal and pretty blasé when it comes to her classmates. I cringe when her classmates’ parents tell me, “My daughter was so excited to see Piper. She kept saying… Continue Reading “The Ducky Life”


VERB past and past participle of spend. ADJECTIVE having been used and unable to be used again synonyms: used up · consumed · exhausted · finished · depleted · drained  This is actually one of my favorite photos from Piper’s intensive therapy. It represents… Continue Reading “Spent”

wa·ter [ˈwôdər, ˈwädər] NOUN a colorless, transparent, odorless, tasteless liquid that forms the seas, lakes, rivers, and rain and is the basis of the fluids of living organisms.

  Water sustains life. People swim in it, bathe in it, ingest it, and probably would not describe it as dangerous. However, when you or a loved one aspirate, it becomes  dangerous. Piper, our daughter, was diagnosed as a silent aspirator at birth. My… Continue Reading “wa·ter [ˈwôdər, ˈwädər] NOUN a colorless, transparent, odorless, tasteless liquid that forms the seas, lakes, rivers, and rain and is the basis of the fluids of living organisms.”

Changing Direction

As we reach the half way mark of our NAPA experience, I want to share what God is teaching me. This trip was all about Miss Piper. The goal was to give her the skills she does not instinctively have and to pattern in… Continue Reading “Changing Direction”

Walk on Wednesday

This week has been rough for my girl. Piper has had to use muscles in her body that have laid dormant since birth. Her cerebral palsy diagnosis is not a life sentence. It is  an explanation that her muscles do not work with her brain.… Continue Reading “Walk on Wednesday”

First Steps

Miss Piper was exhausted after her first day at NAPA center. She complained, but amazed us as she persevered. Snuggles from my worn out girl… 💕 You did good baby girl.

This Little Light

I grew up singing the gospel song, “This Little Light of Mine.” I knew all the verses, motions, and even sang it to my children. There are verses telling children to let their light shine all over the world, not to hide it under… Continue Reading “This Little Light”

No Diagnosis Drama

drama [drah-muh, dram-uh] Any situation or series of events having vivid, emotional, conflicting, or striking interest or results. My original title for this post was The No Diagnosis Depression. After mulling it over, I decided it really is not a depression. Rather, it is… Continue Reading “No Diagnosis Drama”